Jack Joseph Osbourne (born 8 November 1985)
is an English media personality with dual American and British
citizenship. Osbourne was born in London to heavy metal singer Ozzy
Osbourne of Black Sabbath, and his wife and manager, Sharon (née Levy).
In June 2012, Osbourne announced that he had been diagnosed with
relapsing-remitting multiple sclerosis. He had experienced symptoms for a
number of years including blindness in one eye; numbness in both legs; and problems with his bladder, bowel, and stomach.
Osbourne injects Copaxone medication daily, uses vitamin supplements
and hormone replacement therapy, and has travelled to Europe for stem
cell therapy. He has also made lifestyle changes such as minimising
stress, exercising regularly, and significantly altering his diet.
However, he has spoken of his fear of a rapid decline and has admitted
that his doctors have urged him to stop participating in highly
intensive physical workouts: "Right now am I going to be in a
wheelchair? No. But if I don't take care of myself, who knows." While
appearing on Dancing with the Stars in October 2013, Osbourne said that
he did not suffer from "any severe symptoms other than the odd bit of
tingling down my leg and the occasional bout of fatigue."
When
Jack Osbourne was diagnosed with multiple sclerosis (MS), he says it was
his family, including his parents, Ozzy and Sharon, who bolstered him
up and kept him strong. Diagnosing the condition is tricky, which is why
it’s important to know these silent MS symptoms.
“My dad was
around a lot, he asked a lot of questions and was with me through my
entire diagnosis process,” he says. “My mom, too—and to have them in my
corner is crucial: To hear your parents say ‘hey listen we’ll figure
this out as a family’ made me feel like I wasn’t alone. My heart breaks
when I hear about people who have MS and don’t have that support and
they’re in a bad way. It makes me feel very fortunate.”
For the
last few years, Osbourne—a married father of two daughters—has become
more than a MS patient. He’s now an advocate for MS awareness with You
Don’t Know Jack About MS, a campaign in partnership with Teva
Neuroscience, that aims to be a resource that educates people about the
disease in a way that’s easy to understand and shows that you can live a
fulfilling life with MS.
“I have a hard time connecting when
watching videos featuring an expert wearing a white lab coat and
standing in an immaculate set,” he says. “I wanted to create a
destination website that would answer my questions in a really simple
form but I also wanted to dispel the myths about MS,” he says. Designed
for people living with or curious about MS, the site contains
educational content, downloadable patient resources, a series of
webisodes about life with MS, and blog posts from Jack, his friends, and
family members.
The site’s latest webisode, How I Told My
Family About My MS Diagnosis, was inspired by Osbourne’s own experience
as well as by a note he received through social media.
“A
professional athlete who has been living with MS but hadn’t told anyone
about the disease sent me a message,” Osbourne says. “It dawned on me
that there are a lot of people out there who don’t have the confidence
to have that conversation.”
Osbourne also uses the episode to offer tips.
“My family’s initial reaction was worry and they kept saying ‘do you
need anything, do you want anything,'” he says. “I kept saying ‘I’ll let
you know.’ And I think that’s why in this webisode, I bring up that
point. I advise people to tell your family the way you want to be
helped. It took a minute to draw those lines out with my family, to say
you don’t need to do that and I’ll let you know if I need anything. It
was more like I’d say, ‘My shoulder hurts’ and their immediate reaction
would be, ‘Is it the MS?’ I’d say ‘No, my shoulder just hurts.'”
Osbourne’s MS journey began five years ago when he was paying for gas
after coming home from a movie and noticed a black dot in the center of
his vision in his right eye. He soon developed optic neuritis, an
inflammation of a nerve in his eye that is a potential symptom of MS,
and became about 90 percent blind.
“Next thing you know, I
feel like I’m an episode of House, and they give me the news that I have
MS,” he said. “I had no idea what MS is, so it was really quite freaky
to be honest.”
He was put on intravenous steroids, which restored the vision in his right eye, but he says it has never fully come back.
To find out more about MS, Osbourne researched the condition online and
spoke with a family friend who runs an MS charity. These days, Osbourne
is doing well and manages his disease with an injectable treatment
three times a week. “I inject myself which was a big adjustment,” he
says. “There are a dozen treatments out there, but I wanted to find one
that allowed me to live the way I wanted to live. I thought if an
injection would be my best bet to meet those goals than that would be
something I’d do.”
Emotionally, the disease can be very
challenging, says Osbourne. “The most common side effect of MS that most
people will experience at some point is depression or having some kind
of mental health issues as a result, he says. “There are times where I
do slip into a funk. It could be that I’m predisposed to having
depression, or it could be MS.”
Regardless, Osbourne says he handles it the same way he does anything.
“I have to keep putting one foot in front of the other and keep an end
goal in sight,” he says. “My daughters help for sure. Having the
responsibility of taking care of them, being married and producing and
hosting TV shows helps so I can’t just lay in bed—I have to keep things
moving along.”
In the end, he hopes You Don’t Know Jack About MS becomes an immediate go-to to newly diagnosed patients.
“My ultimate goal is to create a website where when someone gets
diagnosed, the doctor suggests he or she visit our website,” he says.
“That’s my goal. I want this to be the MS one-stop-shop.”
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